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“Experiential Knowledge in the Making: Lessons and Perspectives from the DIY-AIDS Movement”

When:
30 May 2024 – 31 May 2024 all-day
2024-05-30T00:00:00-04:00
2024-06-01T00:00:00-04:00
Where:
W-5305, Pavillon Thérèse-Casgrain (W)), UQAM
455
Boulevard René-Lévesque East
Montréal

SCHEDULE

THURSDAY, MAY 30
09:30 – Welcome address

10:00-11:15Shane O’Donnell (School of Sociology / School of Medicine – University College Dublin) “Transformations in Diabetes Care Lessons from Commons-based, Peer-produced Citizen Science.”

11:15-11:30 – Coffee break

11:30-12:45: – Vololona Rabeharisoa (Centre de sociologie de l’innovation, Mines Paris – PSL Université) “On the Multiplicity of Lay Expertise: An Empirical and Analytical Overview of Patient Associations’ Achievements and Challenges”

13:00-14:30 Lunch break

14:30-15:45 – Aude Bandini (département de philosophie – Université de Montréal) “Experiential Knowledge: Conceptual Promises and Challenges in Epistemology”

15:45-16:00 – Coffee break

16:00-17:15Jonathan Garfinkel (Medical and Health Humanities – U. of Alberta) & Brian Cleal (Steno Diabetes Center – University of Copenhagen) “The divine comedy of diabetes and long Covid: an autoethnographic dialogue.”

19:00 – Workshop’s Diner

FRIDAY, MAY 31
09:00-10:15Henriette Langstrup (Departement of Public Health – University of Copenhagen) “Looping for (Self)Care—Personal Digital Health Technology and Algorithmic Systems.” (with Bianca Jansky)

10:15-11:30Clay Davis (Department of sociology – Northwestern University) “The routinization of lay expertise: A diachronic account of the invention and stabilization of an open-source artificial pancreas.”

11:30-11:45 – Coffee break

11:45-13:00 – Susi Geiger (Market Studies – University College Dublin) “Between activist, healer and entrepreneur: the fluid boundaries around marketizing one’s patient expertise” (with Olya Loza)

13:00-14:30 – Lunch

Thanks for their generous financial support :